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The Haemophilia Society is the only UK wide charity for all those affected by bleeding disorders. We help people with bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.
What we do
  • KEEP YOU INFORMED

    If your child is newly diagnosed, it can be a concerning time. We help you find access to care and we provide advice on our website through every stage of life. And if you can’t find what you need, you can get in touch. We are at the end of the phone and happy to help in any way we can even if that means directing you to someone better qualified to answer!
    Find out about membership

  • PROVIDE SUPPORT & COMMUNITY

    As the UK’s only independent charity for everyone affected by a bleeding disorder, we are a growing community of individuals and families, healthcare professionals and supporters all working within the bleeding disorders field. Joining, you'll meet other people with bleeding disorders & most importantly meet a community who knows exactly what you’re going through. Get information & support

  • INFLUENCE & ADVOCACY

    We make it our mission to ensure that access to care for people with bleeding disorder is on par with those with infectious diseases.


    For those affected by the Contaminated Blood scandal, our work with the All Party Parliamentary Group pushes for better support packages for all those affected.


    Read recent news here

What do you need help with today?

ABOUT BLEEDING DISORDERS

UNDERSTANDING HAEMOPHILIA &

OTHER INHERITED BLEEDING DISORDERS

In people with bleeding disorders, there is a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include:

Hameophilia A | Haemophilia B | von Willebrands

EVENTS AT THE HAEMOPHILIA SOCIETY

UPCOMING & RECENT EVENTS AT THE HAEMOPHILIA SOCIETY
UPCOMING EVENT
9th April 2017 at 4:20 pm Brighton Sea Front  Brighton, U.K.

BRIGHTON MARATHON 2017

The Brighton Marathon is one of the UK’s most popular marathon courses, it’s easy to see why with a stunning backdrop of the sea in one of the country’s most vibrant cities!

23rd April 2017 London

London Marathon

24th June 2017 Midlands

Talking Red Conference 2017

9th July 2017 London

Virgin British 10K

10th September 2017 Tyne & Wear

Great North Run

YOUR STORIES

READ REAL-LIFE STORIES FROM OUR MEMBERS

Should people with haemophilia do dangerous sports? In my view, yes, if you can. You take all the safety precautions on offer, you assess the risks and plan for them, and then you go and just do it!

Alan

Rally driving enthusiast

I had done it; my race was now over. I had mixed emotions on arrival at Airlie Beach. I knew I was going to miss my crew; they really are a great bunch and you really do bond with people!

Ben

Clipper round-the-world Racer

What I would say to others with haemophilia A is to definitely ask your haematologist about Extended half-life (EHL) factor replacement. It’s been really good for me.

Ed

EHL factor replacement trialist

COMMUNITY

BECOME A MEMBER

Become a member of The Haemophilia Society free today.

Fill in a simple form and we will send out a membership pack to you.

TAKE ACTION

CAMPAIGN WITH US

Push for fairness for people with bleeding disorders affected by contaminated blood.

Join us in demanding just support packages.

FUNDRAISE

CHALLENGE YOURSELF

Our members and supporters do amazing things to raise funds for us.

Challenge yourself or team up with friends to raise money.

CONNECT

GET IN TOUCH WITH US

We can be found on all the usual online channels – Twitter, Facebook, e-mail.

But if that’s all a bit too high-tech, we’re also on the end of the phone.

OUR NEWS

LATEST NEWS AT THE HAEMOPHILIA SOCIETY